I know most of you have seen my posts about Hannah - so could you please watch this video, and if you have a blog, website, community board, FB or MySpace account, please post the link so your friends, family and blog followers can hear about Hannah and her story. And then if they could post to their blogs, etc!
This disease needs as much exposure as possible in order get more funding for research and a cure. Networking and word of mouth is key. Thank you!
http://www.youtube.com/watch?v=qKEQHHNcBn8
And if you care to donate (any amount no matter how small) to the Children's Gaucher Research Fund (the only research currently being done for Gaucher Type 2/3 at this time) please go to:
http://apps.facebook.com/causes/fundraising_pledges/50402?m=f274b976
I personally have a goal of $500 to help raise by Hannah's 1st birthday in July and would love to overachieve that goal.
If any of you or anyone you know has experience with fundraisers and or PR, please let me know!
Is mic on?
7 years ago
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